Category Archives: Uncategorized

Hello all! It’s been a long time since you’ve heard from me I know and forgive me but there been a lot going on. For starters I’ve had 2 surgeries this year and we started a tea company, also I’ve been receiving training to better serve you.But I am not writing today to update youContinue reading “Disability Pride Month”

I just had my 13th surgery and 5th brain surgery. Every time my pseudotumor cerebri is out of remission and I have to have a surgery, it brings up so many feelings. I try and stay calm and collected until they roll me into the operating room but I go through being nervous, scared, anxiousContinue reading “Feelings”

Throughout this health journey of mine I’ve dealt with it in ways that probably only make sense to me. For example, when I was first diagnosed with Epilepsy and then shortly after with Pseudotumor cerebri, I had what I called sad realization moments. My first sad realization was during a 72 hour extended eeg withContinue reading “Sad Realizations”

Hey Guys, I missed writing my blog but I stopped for awhile to focus on writing my book and getting Enduring Minds The Foundation all set up. Don’t think that since I’ve been gone a lot hasn’t happened because I’ve been busy! In the time that I’ve been away I bought and moved into myContinue reading “Symptoms”

A week ago today I had a seizure. The first seizure I’ve had in 9 months and it scared the hell out of me. I guess those of you who know me are wondering why it scared me so much it. I mean we all know it definetly wasn’t the first time. Well, I thinkContinue reading “Yet another seizure”

Right now I am in this weird place. This place where everything is going well, I’m feeling a bit better but I cant fully enjoy it. I cant enjoy it because I see the cloud hoovering up above. The cloud where your waiting for the other shoe to drop. When you have a chronic illnessContinue reading “The Cloud”

I read a quote the other day and it said “Dont let insecurity ruin the beauty you were born with” Now I do not know who said that but it raised the question of what to do with insecurity when your health ruins the beauty you were born with? With conditions like mine it, thingsContinue reading “Insecurity”

Dear Mama, I am sorry, sorry that you ever have to read this letter. Im sorry that you were chosen to be the parent of a child that has not one but two chronic illnesses. I am forever apologetic that your social and professional life regularly gets paused for things we cant control. Things likeContinue reading “Dear mama”

Have y’all ever been in a place where you  want something you cant have. Well that’s where I am at. I want my body to be at rest, To have some peace, some stillness. I would love to be able to sleep, at least more than two hours. I want to be able to goContinue reading “Pain for the Holidays”

It seems like I always have to fight for myself when it comes to my health. Before it was when I was first started having seizures no doctor believed me they thought I was on drugs, crazy and everything in between but I still kept fighting. If one doctor didn’t believe me I went toContinue reading “Validation”