Category Archives: Uncategorized

If you’ve spoken to me intimately or follow my story and you’re chronically ill, you’ve probably heard me tell you to be selfish. After a conversation with an able-bodied friend who didn’t quite understand why I would tell people that I thought I’d elaborate. I know this may be an unpopular opinion but when you’reContinue reading “Be Selfish”

I’ve been reminded lately how I don’t typically use the word survivor when I speak about my illness and all I’ve been through. And they’re right I don’t but with good reason. When people use the word survivor that means you survived an event that could’ve taken your life or almost took your life andContinue reading “Endure”

Hello all! It’s been a long time since you’ve heard from me I know and forgive me but there been a lot going on. For starters I’ve had 2 surgeries this year and we started a tea company, also I’ve been receiving training to better serve you.But I am not writing today to update youContinue reading “Disability Pride Month”

I just had my 13th surgery and 5th brain surgery. Every time my pseudotumor cerebri is out of remission and I have to have a surgery, it brings up so many feelings. I try and stay calm and collected until they roll me into the operating room but I go through being nervous, scared, anxiousContinue reading “Feelings”

Throughout this health journey of mine I’ve dealt with it in ways that probably only make sense to me. For example, when I was first diagnosed with Epilepsy and then shortly after with Pseudotumor cerebri, I had what I called sad realization moments. My first sad realization was during a 72 hour extended eeg withContinue reading “Sad Realizations”

Hey Guys, I missed writing my blog but I stopped for awhile to focus on writing my book and getting Enduring Minds The Foundation all set up. Don’t think that since I’ve been gone a lot hasn’t happened because I’ve been busy! In the time that I’ve been away I bought and moved into myContinue reading “Symptoms”

A week ago today I had a seizure. The first seizure I’ve had in 9 months and it scared the hell out of me. I guess those of you who know me are wondering why it scared me so much it. I mean we all know it definetly wasn’t the first time. Well, I thinkContinue reading “Yet another seizure”

Right now I am in this weird place. This place where everything is going well, I’m feeling a bit better but I cant fully enjoy it. I cant enjoy it because I see the cloud hoovering up above. The cloud where your waiting for the other shoe to drop. When you have a chronic illnessContinue reading “The Cloud”

I read a quote the other day and it said “Dont let insecurity ruin the beauty you were born with” Now I do not know who said that but it raised the question of what to do with insecurity when your health ruins the beauty you were born with? With conditions like mine it, thingsContinue reading “Insecurity”

Dear Mama, I am sorry, sorry that you ever have to read this letter. Im sorry that you were chosen to be the parent of a child that has not one but two chronic illnesses. I am forever apologetic that your social and professional life regularly gets paused for things we cant control. Things likeContinue reading “Dear mama”