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Yet another seizure

A week ago today I had a seizure. The first seizure I've had in 9 months and it scared the hell out of me. I guess those of you who know me are wondering why it scared me so much it. I mean we all know it definetly wasn't the first time. Well, I think... Continue Reading →

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The Cloud

Right now I am in this weird place. This place where everything is going well, I'm feeling a bit better but I cant fully enjoy it. I cant enjoy it because I see the cloud hoovering up above. The cloud where your waiting for the other shoe to drop. When you have a chronic illness... Continue Reading →

Insecurity

I read a quote the other day and it said "Dont let insecurity ruin the beauty you were born with" Now I do not know who said that but it raised the question of what to do with insecurity when your health ruins the beauty you were born with? With conditions like mine it, things... Continue Reading →

Dear mama

Dear Mama, I am sorry, sorry that you ever have to read this letter. Im sorry that you were chosen to be the parent of a child that has not one but two chronic illnesses. I am forever apologetic that your social and professional life regularly gets paused for things we cant control. Things like... Continue Reading →

Pain for the Holidays

Have y'all ever been in a place where you  want something you cant have. Well that's where I am at. I want my body to be at rest, To have some peace, some stillness. I would love to be able to sleep, at least more than two hours. I want to be able to go... Continue Reading →

Validation

It seems like I always have to fight for myself when it comes to my health. Before it was when I was first started having seizures no doctor believed me they thought I was on drugs, crazy and everything in between but I still kept fighting. If one doctor didn't believe me I went to... Continue Reading →

Epilepsy

I am so excited because November is Epilepsy Awareness Month. I love when unrecognized illnesses get their time to shine. I wish that awareness was raised more for illnesses like Epilepsy. In October the NFL and many other large companies, hospitals even churches wear Pink for Breast Cancer, why not wear purple for epilepsy, or... Continue Reading →

The new normal

I have been in physical therapy for years and recently I have gotten a new therapist who I really like but this Monday he asked me a question and I have been thinking about the answer I gave and what it means ever since. He asked me what were my ultimate goals for therapy? Without... Continue Reading →

Informative Awareness Video

In this video I wanted to give some facts in the most simple way possible about this condition. The song used in the video was picked by my fellow warriors in a support group for Pseudo Tumor Cerebri. I hope you all enjoy.

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