What is really going on

I have benign Idiopathic Intracranial Hypertension and the internet and most doctors will tell you that the diagnoses means that you just have headaches. I am here to tell you that, that is wrong. Headaches maybe a symptom but it is so much more than that.  My ears swoosh all the time, at night it is so loud that I cant even sleep. The pressure in my head is so high that when im upright i’m dizzy and off balance. The pain in my neck and back is someday’s unbearable and lets not forget that its winter and I still have not been able to go outside without sunglasses. We can talk about the symptoms all day but what people don’t understand is after 4 medications every morning and night and 6 surgeries you have a little more than just headaches.  It is so annoying when even your doctors belittle your condition. If our doctors do not understand, how can we expect others to understand. Stereotypes are awful in any situation but even worse when your the victim of the stereotype. We deal with pain everyday, all day long and all we really need or want is for someone, anyone to just understand. The nicest thing someone could ever do is ask questions, hell even google my condition and see what I really go through.