My name is Essence Unique Cheatom. You can call me Unique. I am a 22 year old who suffers from 2 debilitating conditions, Pseudo tumor Cerebri and Epilepsy. But that’s not all I am. Before I became ill I was an active 19 year old who worked 2 jobs and loved going to college. I was preparing for my dreams living life with the man of my dreams. And then the wind got knocked out of my sails. At a normal eye doctors appointment I found out I had fluid and pressure build up on my brain and it was making me slowly go blind.
At that point in my life I knew that I had epilepsy but I only had seizures every few months but this diagnosis drastically changed my life and quickly. After just a few weeks I was legally blind and needing my first brain surgery.
After multiple specialist, medications,seizures and six surgeries later i’m left with a life I don’t so easily recognize so I decided to take it back. Because of my illnesses I can not work or go to school so I have started trying things I would have never tried if I was well. I found a love for gardening, making wigs and I fostered the idea of starting a foundation for people like me who endure illnesses that affect the brain. I also recovered a love that had drifted away WRITING.
Since elementary school I excelled at writing and in English but just going through life I didn’t keep at it. Being at home all day I realized I can help maybe even encourage someone else. That’s where the idea for this blog came. I hope that my stories, my words can help someone who needs it. I want this to be a safe place for people to discuss their issues, ask questions and laugh because sometimes we cry so hard all we really want is to laugh!
I want everyone to know I am not just a writer trying to make someone laugh I am someone who lives, suffers and endures this everyday. Also I am a volunteer Patient advocate. I have taken classes on ways to support you in anyway you need and to answer any questions you may have.
I hope you enjoy this blog and I thank you for reading, laughing and enduring with me.
My daughter is going through this exact same thing right now. Her family Dr fired her neurosurgeon. He actually said it was not medically necessary for her to be seen. Omg. Please if u ever want to chat let me know. My daughter by the way is 23 almost 24 and has had this horrible illness for 4 years.
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Sorry that your daughter has to endure as well. Please let your daughter know that Im always here to talk. I am also 22 about to be 23. Im so grateful you found my blog. I pray you keep reading
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